The Arc of Essex County:  973-535-1181;

The Arc of New Jersey: 1-732-246-2625;

The Arc of Essex County’s Down syndrome website:

Department of Children and Families/PerformCare – 1-877-652-7624:

Mom2Mom helpline for parents of Special Needs Children/24 hour parent support:

The Sibling Support Project

Family Resource Associates (check out their great newsletters for siblings)

The Arc of The United States

The National Down Syndrome Society

The National Down Syndrome Congress

Down Syndrome Education International

The Down Syndrome Research and Treatment Foundation

The Arc of New Jersey

The Arc of Essex County Parent Support Group –973-535-1181 ext. 1223

Network 21 (Central New Jersey)

Billy’s Buddies (Bergen County)

Family Resource Associates (Shrewsbury)

The Complete IEP Guide How to Advocate for your Special Ed Child by Lawrence M. Siegel

Wrightslaw: From Emotions to Advocacy by Pam and Pete Wright (

New Jersey Department of Education, Special Education Page

Private School Association for Students with Disabilities in New Jersey

New Jersey State Approved Schools list (

New Jersey Coalition for Inclusive Education

SPAN (Statewide Parent Advocacy Network)

ACNJ (Association for Children of New Jersey)

Disability Rights New Jersey (formerly New Jersey Protection and Advocacy)

Books for Children:

  • We’ll Paint the Octopus Red by Stephanie Stuve-Bodeen
  • My Friend Isabelle by Eliza Woloson

Books for Parents:

  • GIFTS: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives Edited by Kathryn Lynard Super
  • Babies with Down Syndrome – A New Parents Guide by Karen Stray-Gundersen
  • The Read-Aloud Handbook by Jim Trelease
  • You Will Dream New Dreams Inspiring Personal Stories by Parents of Children With Disabilities by Stanley D, Kleinm PH.D and Kim Schive
  • Expecting Adam: A True Story of Birth, Rebirth, and Everday Magic by Martha Beck
  • Choosing Naia: A Family’s Journey by Mitchell Zuckoff
    Woodbine House books (

The Toys ‘R Us Differently-Abled Toy Guide

Beyond Play (

Abilitations (

Down Syndrome Medical Clinics:

  • The Judy Center at Hackensack University Medical Center
  • Children’s Hospital of Philadelphia
  • DDC (Developmental Disabilities Clinic) at Morristown Memorial Hospital 973-971-4095
  • DDC at Overlook Hospital 908-598-6655
  • Kennedy Krieger Institute, Baltimore MD
  • Children’s Specialized Hospital

Breastfeeding for Children with Down Syndrome:

  • The Candle Lighters is a non-profit established in 1974 by a group of concerned parents, relatives, and friends who wanted to assist in the growth and well-being of individuals with developmental disabilities and their families in our community. The role of the Candle Lighters is to raise funds for unfunded and underfunded programs of The Arc of Essex County that benefit children and adults with developmental disabilities in Essex and surrounding counties. Programs supported by The Candle Lighters include: The Stepping Stones Early Intervention Program, Camp Hope, and Recreation.

    Over the past decade, many of the fee-for-service programs provided by The Arc of Essex County have periodically been in financial jeopardy. Thanks to the generous support of the Candle Lighters, the cost charged to families for these programs continues to be significantly reduced.

    For more information please visit: