Resources

Helpful Resources for Children with Special Needs

 

The Arc of Essex County:  973-535-1181; www.arcessex.org

The Arc of New Jersey: 1-732-246-2625; www.arcnj.org

The Arc of Essex County’s Down syndrome website: www.downsyndromeconnect.org

Department of Children and Families/PerformCare – 1-877-652-7624: www.performcarenj.org

Mom2Mom helpline for parents of Special Needs Children/24 hour parent support: http://ubhc.rutgers.edu/mom2mom/index.htm
1-877-914-6662

 

Support for Siblings

 

The Sibling Support Project www.siblingsupport.org

Family Resource Associates www.frainc.org (check out their great newsletters for siblings)

 

National/International Resources

The Arc of The United States www.thearc.org

The National Down Syndrome Society www.ndss.org

The National Down Syndrome Congress www.ndsccenter.org

Down Syndrome Education International www.dseinternational.org

The Down Syndrome Research and Treatment Foundation www.dsrtf.org

New Jersey Support

The Arc of New Jersey www.arcnj.org

The Arc of Essex County Parent Support Group –973-535-1181 ext. 1223

Network 21 (Central New Jersey) www.dsnetwork21.com

Billy’s Buddies (Bergen County) www.wyckoffymca.org

Family Resource Associates (Shrewsbury) www.frainc.org

Advocacy

The Complete IEP Guide How to Advocate for your Special Ed Child by Lawrence M. Siegel

Wrightslaw: From Emotions to Advocacy by Pam and Pete Wright (www.wrightslaw.com)

New Jersey Department of Education, Special Education Page www.state.nj.us/nj/education/specialed

Private School Association for Students with Disabilities in New Jersey www.asah.org

New Jersey State Approved Schools list (https://homeroom5.doe.state.nj.us/directory)

New Jersey Coalition for Inclusive Education www.njcie.org

SPAN (Statewide Parent Advocacy Network) www.spanadvocacy.org

ACNJ (Association for Children of New Jersey) www.acnj.org

Disability Rights New Jersey (formerly New Jersey Protection and Advocacy) www.drnj.org

Books

Books for Children:

  • We’ll Paint the Octopus Red by Stephanie Stuve-Bodeen
  • My Friend Isabelle by Eliza Woloson

Books for Parents:

  • GIFTS: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives Edited by Kathryn Lynard Super
  • Babies with Down Syndrome – A New Parents Guide by Karen Stray-Gundersen
  • The Read-Aloud Handbook by Jim Trelease
  • You Will Dream New Dreams Inspiring Personal Stories by Parents of Children With Disabilities by Stanley D, Kleinm PH.D and Kim Schive
  • Expecting Adam: A True Story of Birth, Rebirth, and Everday Magic by Martha Beck
  • Choosing Naia: A Family’s Journey by Mitchell Zuckoff
    Woodbine House books (www.woodbinehouse.com)

EDUCATIONAL TOYS

The Toys ‘R Us Differently-Abled Toy Guide

Beyond Play (www.beyondplay.com)

Abilitations (https://store.schoolspecialty.com)

www.signingtime.com

MEDICAL RESOURCES

Down Syndrome Medical Clinics:

  • The Judy Center at Hackensack University Medical Center www.hackensackumc.org
  • Children’s Hospital of Philadelphia www.chop.edu
  • DDC (Developmental Disabilities Clinic) at Morristown Memorial Hospital 973-971-4095
  • DDC at Overlook Hospital 908-598-6655
  • Kennedy Krieger Institute, Baltimore MD www.kennedykrieger.org
  • Children’s Specialized Hospital www.childrens-specialized.org

Breastfeeding for Children with Down Syndrome:

THE CANDLE LIGHTERS

The Candle Lighters is a non-profit established in 1974 by a group of concerned parents, relatives, and friends who wanted to assist in the growth and well-being of individuals with developmental disabilities and their families in our community. The role of the Candle Lighters is to raise funds for unfunded and underfunded programs of The Arc of Essex County that benefit children and adults with developmental disabilities in Essex and surrounding counties. Programs supported by The Candle Lighters include: The Stepping Stones Early Intervention Program, Camp Hope, and Recreation.

Over the past decade, many of the fee-for-service programs provided by The Arc of Essex County have periodically been in financial jeopardy. Thanks to the generous support of the Candle Lighters, the cost charged to families for these programs continues to be significantly reduced.

For more information please visit:
www.candlelighters.org